Sickle Treatment and Outcomes Research in the Midwest (STORM) is a regional sickle cell network, established to improve outcomes for individuals with sickle cell disease (SCD) living in the Midwest. One goal of STORM is to increase provider knowledge about evidence-based management of SCD. STORM TeleECHO, a replication of the Project ECHO (Extension for Community Healthcare Outcomes) telementoring model, uses web technology to link expert inter-disciplinary specialist teams with clinicians, allowing experts to mentor clinicians, provide feedback on difficult patient cases and share expertise via monthly case presentation and didactic educational sessions.
Ohio Department of Health Newborn Screening Follow-up Program
The Region I Ohio Department of Health-Sickle cell services program provides follow-up services including, confirmatory testing, inheritance risk counseling services, care coordination and referrals for preventive and evaluative disease management. Educational presentations about newborn screening, sickle cell trait (SCT) and sickle cell disease to healthcare professionals, community organizations, affected families and the general public are also provided. The program also produces and distributes educational material on newborn screening, sickle cell disease, sickle cell trait, sickle cell trait and athletics.